Saying Goodbye to Addison Paul Grace

Addison-Paul-13-February-2015-300x300“There’s no fetal heart” the words that will forever be on repeat inside my head.

We had a routine scan on the Thursday morning, I’d woken at 4am realising I hadn’t felt much movement. I shook it off thinking don’t be silly go back to sleep, you’ve got a appointment in a few hrs and all will be ok. I couldn’t sleep, I went downstairs for a cold drink thinking maybe that’d wake her up I thought maybe I felt a little flutter but looking back that was just in my head. I called my mum to collect our 2yr old as I said I had a funny feeling. Not really knowing what that feeling was.

Our little boy was born at 33weeks due to being small, we had twice weekly scans with him to keep an eye on his growth and it was just a matter of time for him to come out. I had 3 lots of steroid injections with him, and was told on Xmas eve it was time to pull him out, born on the 27th December weighing 1.74kg he was a beautiful healthy little boy. So what I was expecting to hear at the routine scan was that it was time to take her out, however all our previous scans had shown no signs of anything like we had with our son, she was healthy and looking good for a 35plus delivery.

That morning we drove to see our sonogropher (who we’d gotten to know well after our first baby and then second time round, we felt like family walking into the waiting room each time.) the drive in was quiet, neither of us said a word. We walked into the room after waiting some time, I told her I wasn’t feeling much movement, she said lets take a look.

The minute the screen turned on in front of us we knew, something was different and then there it was she pulled away and put her hand on mine and said “I’m sorry, there’s no fetal heart” Ben grabs my hand and we both have tears streaming down our faces, I want to scream but I just clench up as our sonogropher has a look to see if she can see a cause. She says I’m sorry, and all I can say to her it’s ok, it’s ok. I look back and think what was ok in that moment? Really what was ok about it? Nothing, nothing was ok, my whole world just came crashing down in a second and all I could say was its ok!?

We then had to see our dr who gave us the options on what we needed to do next. I still had to deliver this baby somehow. We decided her birth would be just like her brothers a c section, I  couldn’t bring my self to experience a natural birth when the end wouldn’t be what it should be. (I knew having a c section would mean it would be over quicker) We got booked in for first thing the next morning, I remember walking out of the Drs office covering my belly with my cardigan I was hiding my baby, I wanted her out, I wanted it all over with but we had to go home and somehow I had to try and get some sleep but I lay awake asking why us? What did we do to deserve this? How did we become a statistic?

Morning came, (Friday 13th February) we walked into the hospital. My husband checked us in whilst another pregnant women was checking in too. I sat down in the waiting room, tears rolling down my face a nurse comes over with a box of tissues, she knew why I was there. I was the one who’d lost their baby. Soon enough it was time to go to theatre, the nursing staff took good care of me whilst Ben put on his scrubs. I remember how cold it was, soft music in the background and Ben by my side watching the moment his little girl came into the world. As she was coming out Ben said to me she’s got lots of hair and indeed she did, this is when normally you’d hear a little cry and I was praying so hard that she’d let out a little cry but nothing, just silence. The beautiful nurse wrapped her up in a blanket that I’d bought at 20weeks after finding out we were having a baby girl. It was at that moment i realised every little bit of my baby was real, she was real, A beautiful baby girl who I had so many hopes and wishes for, the baby girl I’d been growing inside of me for the last 7 months, she had arrived and was absolutely perfect but she couldn’t stay on earth with us.

This time was suppose to be different, this time I prayed I got to have my baby girl in my hospital room with me not down in special care nursery. Well I got to have her in my room, but it wasn’t how the dream went. We got back to our room,  baby girl in her crib it was a very surreal moment. We got some alone time and then our nurse came in to help us take photos, prints of her little hands and feet and we even got a lock of her beautiful dark curly hair. She told us how beautiful she was and how perfect, we cannot thank the nursing staff enough for being so wonderfully caring. We’ll forever think of them and be thankful of them for helping us through this storm as they became part of our healing.

That first night I cried and cried I knew we’d probably have to say goodbye to our baby girl the next day. My incredibly strong husband held me and wiped away my tears, We decided together that it was time. Mum, Dad and our little boy came to say their goodbyes too.

We then had a few more days in hospital which felt like we were living in this little bubble, a very safe bubble where the rest of the world just didn’t exist. It came time to leave the hospital, We walked out without our baby, Just like we did with our son only we knew he’d come home once he was big and strong. This time we were going home to plan a funeral.

Addison’s service was beautiful, we had family and friends travel to come say their goodbyes. I realised not only did we loose our baby girl but we lost a sister,granddaughter, niece, great granddaughter, great niece and a little friend. They too are grieving and to them I say thank you, thank you for being there, for giving our girl the beautiful send off she deserved.

Some time has now passed and there are still days that hurt just as much as the day we lost her. May she forever be our little angel up in the sky watching over us. She will be forever part of our family, her birthday will be celebrated just the way it should be every year and she will be forever loved.

For whatever reason this happened to us, we have hope, with out hope we have nothing right? Hope for research, hope to reduce the statistics and finally hope for our future.

Hunter James Cullen’s Story

hunter

My angel baby: Hunter James Cullen, 06/8/13

I have two children: one living, the other an angel baby. My living child, Siena Jane, is three. She is my firstborn. She is my love, and all my hopes and dreams for both of my children now rest on her. She is what I call my calm before the storm.

‘The storm’ is Hunter, my second child, my angel baby. He would be almost two now. He was the storm, right from the word go. The pregnancy was a surprise, that’s for sure, but we welcomed the idea of a baby, regardless of whether he was planned or not.

The whole pregnancy was painful – Hunter’s movements were so rough that I would sit in pain, conscious of my own movements so as not to make him to move around more.

Then, the biggest storm of all: I lost him. His precious little heart stopped beating, no movement. I felt the life drain out of me. Inside me was an emptiness that I would never be able to fill. The light dimmed and left a raging hole, a place so dark that it scares me just to think about it. The storm had begun.

On August 5, 2013, I awoke to a normal day, just like any other. It was a Monday. I had Siena, my then 1.5-year-old, at home; my husband Matt was still in bed, as we were heading off to the doctor to get some checks done on my pregnancy. I was 34 weeks and was getting excited to meet our little boy, already named Hunter.

After some time, I realised that I hadn’t felt any movements from Hunter. I decided to drag myself up off the lounge and make an ice cold cup of water (they say cold will get the baby moving every time). After minutes of drinking my water, there was nothing. Still.

Panic was setting in, but I was trying to rationalise why he wouldn’t be kicking yet. I decided I’d try a cup of coffee instead. Still nothing.

I sat down and began to let the reality sink in. Shortly after, Matt came downstairs to see me in a bit of a panicked state. He tried extremely hard to keep calm, but also hurried me up so that we could get to the doctors and get it checked out properly.

By the time we arrived at the doctor I was frantic. I explained that Hunter wasn’t making movements this morning, and that I was terribly worried. The doctor tried to stay as calm as possible, but the anxiety in the room built. He moved the Doppler over my big belly and struggled to hear anything. Then maybe there was something. Maybe, a slight chance there was a heartbeat – but he explained that he couldn’t be sure it wasn’t my own heartbeat.

He said we needed to go to hospital, to hurry in and they will be waiting. The car trip there was frightening and quiet. Matt and I were frozen. The only thing he remembers is the song that was playing on the radio: My Resolution.

My memory of that morning from there is a blur. All the minutes and hours after seem like a chain of events that I can’t bring myself to remember quite right. So here are the pieces that I remember.

We arrived at the hospital and I was lead into a stale room where I’m hooked up to machines. The next thing I recall is the doctor explaining to me that there is no heartbeat. Hunter has passed away through some time in the night, encompassed in my warm body, listening to my heart beat. I didn’t even know.

We had no way of knowing what to expect, the midwives and doctors explained to us what was to happen moving forward, and it seemed so cold. I asked if they could give me a caesarean and get him out, see if there was any hope. They said it wasn’t ideal; that for me to heal, to grieve properly, that a natural delivery was the best option. This was what I would have done if he were still alive, so we decided to do the same what we would have done if he were to be born alive.

We were told to go home, to try and rest. To grieve in privacy. The next day would be the day we would meet our angel baby: Tuesday 6th August would be Hunter’s birthday. Not the day he went to be with the angels, as he was already there.

We barely slept, and I wondered for hours, ‘how did this happen, why my boy? How did we get here?’

Arriving at the hospital was morbid. There’s no other word for it. Matt and I had no idea what to expect. I felt so awful, and unforgivingly guilty; a mother’s grief and guilt, all wrapped into a horrid bundle of messiness.

We walked through the halls into a very quiet delivery suite. I had no idea of what was to come, how being induced worked. I can tell you that the beginning of this whole delivery wasn’t great. However, a few hours in, we were blessed by a staff change over, and the most amazing midwives that I could ever meet. One who was younger than I, but somehow so much older, the other so encouraging and willing to help and be with us emotionally as much as she could. These women deliver babies every day, and have the joy of listening to those little babies crying and gasping for their first breath. This day it would be silent.

Hours later, we greeted our little angel baby. He was perfect. He was still, but he was perfect, so I got to see my angel baby’s face, touch his lips, feel his body on mine, and hold his little fingers in my hand.

Matt chose to play My Resolution at Hunter’s funeral; I chose to play Time After Time. Both songs belong to my angel baby now.

I live with this every day. My heartbreak is not as raw today as it was yesterday, and yesterday it was not as raw as the day before that. Still, every day, my heart has a hole where my baby angel’s memories are. I cry a lot. I visit the cemetery often. I talk to Siena about her baby brother. We celebrate his short lived life in my womb.

Most days I’m good. Some days I am not. Sometimes people forget that I have a son. Sometimes they remember. The days when a stranger asks whether I’ll have more children break me down. I want to say I have one more, I want to tell them my story. But if I do, will they be apologetic, sympathetic or feel guilty for asking. All responses that I know make me cringe as much as they do for asking.

It is now more than two years on. I will continue to raise awareness of stillbirths, and help The Stillbirth Foundation to create interest and generate much needed funding so that research can be conducted into why stillbirths occur. I will fight for us and all the other families who have lost a baby or who will lose a baby unjustly. I will fight to find solutions to this problem, so other families don’t have to suffer this pain and heartbreak. I will be strong. I will do this in my son’s name, because I never want anyone to hurt as much as we have.

Every year 2190 babies are stillborn in Australia. That’s 6 Australian families who experience the devastation of stillbirth every day. Hundreds of parents have added their support to show that #iamthatstatistic. Will you join them? See iamthatstatistic.org.au.

In loving memory of Maurice Stanley Cummings

Maurice-Cummings1-300x300THE DAY OUR BABY DIED…..

Nervous and anxious, I sat in the waiting room gripping my husband’s hand. This last week I hadn’t been feeling well. I had developed lower back and pelvic pain and just couldn’t get comfortable. I’d been having Braxton hicks which had progressively become stronger and I just didn’t feel right. At my last appointment only two days earlier, my Obstetrician had diagnosed me with having an ‘irritable uterus’ which explained my discomfort and mimicked labor symptoms. Yet sitting here I didn’t feel confident and just shy of 6 months pregnant, was not feeling reassured.

I have one of the best Private Obstetricians so I took comfort knowing I was in the best hands. He called me in and gave me a complete examination. There were no signs of labor. My cervix was completely closed, heart rate normal, nothing to cause concern at all.

That night I gave birth to our son…..

My contractions began at midday but I had no idea they were the real deal! I couldn’t be in labour, it wasn’t the right time and my diagnosis of irritable uterus explained these ‘mock’ contractions. However, hours later, once they really intensified and I was on the floor in agony, my husband called the hospital.

We were told to come straight in. As soon as I got in the car the reality sank in. We were having our baby. This was my second labour so I was no longer naive to what we were facing.

I remember looking at the clock on the dash between contractions and it were as if time had stood still. The numbers blurred and I remember waves of heat flooding through my body. We were about 10 minutes from the hospital when an all too familiar urge to push came over me. I desperately wanted to hold on, to make it to hospital, to not do this this by ourselves. And then, completely beyond my control, our son was born in the car. My husband pulled over and followed instruction from the 000 operator. My waters never broke as our baby was still inside the amniotic sac (1:80,000 births). My husband had to break through the membrane to get our baby out, to give him a chance at life. It was the most tragic and heartbreaking moment I have ever experienced, watching my husband desperately try to revive our son whom only minutes earlier I could feel kicking inside. Once the ambulance arrived, the paramedics worked on him for a while but he was just too little to survive. He was placed on my chest for that very first cuddle. With my heart in agony and despair, tears streamed down my face as I took in all that I could of our gorgeous baby boy. Desperately hoping for him to take a breath. Hoping for a miracle, desperate to wake from this nightmare. But it did not.

Our lives instantly changed forever.

DEATH ANNOUNCEMENT…

Laying in the hospital bed, my husband and I were in complete shock, silence and denial. It would take weeks before this new ‘normal’ would sink in. We had cried all through the night and my face ached, my eyes were stinging and my cheeks tight from the dried tears. The sun had come up and the world had continued to go on! We would now have to contact our family and friends to announce the birth and death of our baby boy Maurice. For the rest of that day I remained cool, calm and collected. Putting on a brace front, trying to survive, pretending to be okay. The visitors came and went in shifts but I don’t remember anything anyone said or did. Nothing could sink in. I was far from okay.

COMING HOME….

Coming home, this was going to be the second hardest thing to do. We would have to face reality and explain to our 3 year old daughter that her baby brother had died and there was no longer a baby in mummy’s tummy. This has since taught me the resilience that children have. Life is black or white and you’re either right or wrong. Our daughter was amazing at her understanding and acceptance of the news we had told her. Her compassion was incredible, she knew we were devastated and would bathe us with love and cuddles. I have learnt so much about my daughter and have a much deeper respect for her at such a young age. She is an independent , caring and loving child with thoughts and feelings of her own and all to often I believe as parents it is easy to brush off or dismiss them because they are only ‘little’. Our daughter is very intuitive and is so in tune with the people and life around her. To this day she often mentions her brother and tells us he is playing with the fairies in our garden. We love that she doesn’t need to hide her thoughts and can be so open. It won’t be until she is a grown woman herself that she will truly understand the enormity of what our family experienced.

ONE WEEK LATER…

A funeral, there would have to be a funeral so this is where I started. That first week consisted of planning, researching, songs, poems and writing a letter to my little boy. It was a surreal blur, I was living in a bubble. It hadn’t sunk in, the grief was too raw to accept. I distracted myself with planning Maurice’s memorial, I threw myself into it 24/7 because if I stopped for too long, I knew I would fall apart. Human instinct of survival kicked in and so that’s how I got though that first week.

MY SOLICE….

My husband was amazing, literally out of this world amazing! He was my biggest support, my rock. He was so unbelievably strong for our little family. He held it together and he got us through the nightmare we were living. I was trying to be strong too, only a few people really unveiled my true self, I put on a thick skin and tried to go on with life. But it caught up with me and I wasn’t coping. I would let my guard down in the security of having a shower. No one would see me cry, I could get it all out, protect my daughter from this mess of a mother and try to move forward. I found it somewhat therapeutic knowing the water would wash away my tears, and give me just enough strength to put on my ‘coping’ mask.

NOT COPING…

It was around week 3 when I became aware of my fear to leave the house, to go to the supermarket, to go for coffee. The anxiety levels peaked at the thought of being outside of my comfort zone. The breaking point was the one that really cut me up and was the trigger to getting help. It was my daughters first day of pre-school. I pulled up out the front and couldn’t get out of the car, fighting back tears, I turned the ignition back on and began to reverse out of the park. My daughter asked where we were going and when I said home she burst into tears. I couldn’t do that to her, the entire Christmas holidays she had been looking forward to this day! So somehow I found strength, I have no idea where it came from but I did and I took her to that first session. Sadly, it would be the only time I took her, I just couldn’t cope in any environment. I couldn’t bring myself to attend our mothers group catch ups or take my daughter to dance class. The guilt I suffered thinking I had let my daughter down was immensely painful and I hated having to rely on friends to do these mundane tasks for me. Why couldn’t I just snap out of it, get on with life. Why was I still trying to catch my breath in this bubble I was living in.

SEEKING HELP….

Admitting you need help is one of the hardest things to do! I believed I was a strong person and should be fine to cope on my own, or so I thought!

I had known of two other families that had tragically given birth to their babies born sleeping. These mothers whom are beautiful women, whom love unconditionally and did everything deemed ‘correct’ in their pregnancies and yet still unjustly never got to see their baby girls take a breath. I guess you try to justify ‘why’, but you cannot. It is cruel and random and there is no rhyme nor reason to why or whom it happens to. Stillbirth is unbiased, unforgiving and now I find myself a statistic.

I knew that in order to move forward and be the mother and wife my family deserved, that I would have to seek help.

The best thing I did was see a psychologist. We worked through everything I was feeling and doing, my grief, the physical pain, the emotional pain, even topics that I didn’t realise were related became an important part of our sessions for me to accept this reality. Quite possibly the most important lesson learned was that I cared too much about how others responded to our tragedy. This was their issue and not mine. If they were uncomfortable talking about our baby or experience then that was their problem and I shouldn’t be made to feel as though I have to conform to their opinions.

We never expected anyone to fully understand what we had just gone through but a little empathy rather than formed views or opinions on how we should cope or what we should/shouldn’t do, feel or say were certainly not helpful, supportive nor welcome and we learned to brush them off.

What we found most touching is that experiencing such a traumatic event certainly builds relationships. We were and still are incredibly fortunate to have such a wonderfully strong support network and were surrounded by love. We gained closer friendships, formed new friendships but also sadly drifted from others when true colours were shown which I guess is the reality of life.

PTSD…

I suffered post traumatic stress. Delivering and losing our baby in such a traumatic way was incredibly hard to deal with. I still often think about it and I can only describe it as a scene from a movie. For as long as six months after, I would have panic attacks when confronted with anything associated with an ambulance. If driving , I would be forced to pull over as my grief consumed me. I would get flashbacks and immediately be taken back to that night.

Had I not have received the proper help and guidance I wonder if this would still affect me? I’m not completely desensitised to Ambulances, that all to familiar night is remembered but it doesn’t stop me in my tracks, I can take a deep breath and continue on my way.

PND…

Recurring frequent nightmares were taking their toll. One night I would be re living the birth and the next night I would wake up to cries of a newborn, I would feel the ‘let down’ in my breasts and for a split second I would believe that the reality was all a horrid nightmare and that our baby was just in the other room. It was a cruel cruel mind game that my sub conscience would trick me with.

I was incredibly depressed, every time I looked in the mirror I saw disappointment. A body that failed me, that gave up on its pregnancy at 6 months, why couldn’t it have just waited an extra few weeks. Was that really too much to ask? Instead my reflection mocked me. What was once a beautiful round tight baby bump was a dishevelled sagging flap of skin that looked so foreign being attached to my body. It was spongy and disgusted me to look at. How different I had felt following the birth of our daughter. Looking in the mirror then, I was proud of how ‘flat’ my belly was , even though it was exactly the same as it is now. I knew it would soon disappear and return to its pre pregnant state but right now I wanted to cover up and hide.

Then there were my breasts, only weeks earlier they had been full, perky, preparing to soon be a milk production service. Now they ached, sporadic bursts of pain would shoot through them, stopping me in my tracks. I had been given a tablet to stop the milk yet the colostrum still came and my hormones were fighting a losing battle. Now my boobs just hung there, lifeless, two sizes smaller and with no purpose. Sagging and empty, depressing.

The sight of blood haunted me and still does. My mind immediately flashes back. I remember looking at the car seat as the ambulance officer pulled me out of the car, it was a bloodied watery mess and for the next three weeks I continued to bleed. I was having to wear maternity pads and remember feeling so heartbroken as to how unfair and cruel this world is

Again I have my psychologist to thank as she explained theories as to why this was all happening and strategised ways to overcome what was bringing me down.

In the 18months since Maurice died, a few phobias and nightmares have reared their ugly heads, triggered unsuspectingly by different events in our life. I have accepted that this will most likely be the case for the rest of my life. It’s not necessarily a bad thing as it is a very important part of our life story and I don’t want to forget or pretend it didn’t happen.

Yes it gets easier and the days aren’t as tough. But my baby is never coming back and that pain and grief will never soften. I remember that dreadful heartbreaking day all too perfectly. Every detail, every smell, every sound. It will never leave me. Such terror will always hold its place in my heart. And I don’t want to forget as that day was the day our beautiful baby boy was born. The day we held him in our arms for the first and only time. When I breathed him in and loved him unconditionally. Taking in all his perfectness. His face, his cheek bones, his jaw line, lips, ears, arms, fingers, legs and toes. He was beautiful and that can never be taken away from me.

Every now and then I find a piece of my shattered heart in the most peculiar place and hope to one day piece it back together a little bit at a time. I long for the day that I think of my darling baby Maurice and find myself with a smile that replaces what was once a tear.

PREGNANCY AFTER LOSS….

It was going to be negative, I couldn’t have fallen pregnant six weeks after our sons death. I thought back to the only night it could have been possible, we had been to a friends wedding and for the first time since our sons death we had allowed ourselves an enjoyable night out, my mind wandered back…. surely my body wouldn’t have been ready. Did I want to be pregnant? Yes…No…..I didn’t know. I was scared, terrified, I, we couldn’t go through this pain again. It would be too hard. Yes we wanted more children but not if it meant losing another. Maybe our daughter was enough. Yes, she is perfect. We didn’t need more children, but she deserved siblings. It would be cruel to take that away from her. We couldn’t be that selfish. We both wanted children, not a child. If I were pregnant then it was meant to be…… My thoughts agitating me, I looked at my phone, 5 minutes had passed. I picked up the stick……two lines. Two very strong bright pink lines. My goodness!! We are pregnant again!

I knew we would have a long road ahead of us. After Maurice had died and autopsy results came back, my obstetrician concluded that I had an incompetent cervix. I was now categorised ‘high risk’. I would need to have a cervical stitch and would have to be incredibly careful, light duties and bed rest. 12 weeks was not our safety net, we had to make it to 14. I was petrified and convinced I would miscarry. This was pregnancy number 6. We had our beautiful 2 year old daughter, our son who died too prematurely and 3 miscarriages. The odds were not in our favour.

I yearned to be excited, I wanted nothing more than to be a naive mother who falls pregnant and not once considers the possibility her baby might die. I wanted to announce to the world we were pregnant again. But the thought terrified me. What if I jinx us by telling people. I had always believed in karma and that in being a good person would reflect positively on your life. Stillbirth was one of those things that happen to other people. I now realise how absurd that was.

Those first 12 weeks were the longest of my life. Every twinge, ache, pop, bloated feeling, I was convinced was the sign of miscarriage. Every time I went to the toilet I would examine for blood. This had to be too good to be true. Surely I couldn’t have a smooth sailing pregnancy straight away. I always miscarried, thats just how it was. I was so sick. It felt great to feel so horrible. I had proper symptoms, I was gagging, tired, faint, my breasts sore and achy. It was best ‘worst’ I had ever felt! 12 weeks came and clicked over and I was still pregnant. I had considered that the baby had stopped growing and that the scan would show the baby had died. I’m not a morbid person but having lost babies, I had to be prepared for worst case scenario. We had our scan and everything was as it should be.

It was an incredibly tough pregnancy, mentally, physically and emotionally. I required psychological sessions and spent many weeks on bed rest. They were the longest 8 months of my life. To be honest, I’m not sure I could go through it all again but I am so unbelievably grateful that we fell pregnant so soon. Had it have been an active decision to ‘try’ then I’m not sure I would have ever been ready. I cannot help but to think that somehow this was the path we were meant to follow.

RAINBOW BABY….

At 37 weeks we welcomed another beautiful baby boy. Another son whom would not be here if his brother had survived. All we can do is believe that this new little man has great purpose and is meant to be born into our little family. Proving this theory to us as he was delivered via emergency c-section, not wanting to wait another minute! My first words to my husband in that moment were ‘He is breathing…..!’.

18months on and our third baby has certainly helped our family’s healing process but the heartache still seems so raw and not a day has passed where Maurice has not been in our thoughts! Losing him has taught us so much and shaped us into who we are today. We now love and live our lives differently to honour the fact that he cannot. We hold our children closer and breathe them in, never taking them for granted and are dedicated to being the best parents we can by always putting family first and being selfless to their needs. I’m sure Maurice is watching over and protecting his big sister and little brother always!

TO BE CONTINUED….

As told by Cara Cummings, Maurice’s mum.

TO DONATE:

To donate to the Stillbirth Foundation Australia and help fund much needed research, please visit: http://www.stillbirthfoundation.org.au/donate/

Remembering Layla Emerald

Layla-Emerald-Youngman

Layla Emerald.  We decided on her name while on our baby moon in Vanuatu.  She was a part of our family long before her birth.

Born Still Five Days Past Due

Tragically, and still so hard to fathom, Layla was born still five days past her due date in July 2011.  Her little heart just stopped beating, and she stopped moving in my belly.  I knew something was really wrong, and despite trying everything to rouse her, the doctors confirmed the worst.  That afternoon is like a horrible, cruel nightmare that still creeps back into my mind on my “sad days”.  How do you even begin the process that the little life you’ve been lovingly nurturing for more than nine months is gone?  But yet still inside you?  I still had a big, round pregnant belly.  But we would not hear her cry at birth; we would never see her open her eyes, and we wouldn’t have the chance to strap her into her capsule and take her home from the hospital.  And a funeral for a baby is just about the most harrowing and distressing thing someone can endure. How to begin to process such an awful occurrence is still beyond me.  I’m truly not sure how I did it.

Sheer Perfection

Layla was exquisite.  She was perfect.  Too perfect for earth, in fact.   Her baby sister, who we have the privilege of parenting in a real-life sense, continues to offer us beautiful insight into what Layla might have looked like as a baby, a toddler, a pre-schooler.   But, the wondering is something that I’ll carry with me for the rest of my life.

The Fog of Desperate Sadness

I honestly felt that there was no possible way I could heal from Layla’s loss.  No way I could live without her in my arms.  I was certain I’d never smile or laugh again, and that the fog of desperate sadness that I lived under for months and months was my forever.   I shuddered at the thought of ever being pregnant again – because no-one could promise me it wouldn’t happen again.  And I couldn’t have survived it a second time.  Of this I was sure.

Four Years On

And yet, here I am four years on – standing, smiling, and living a truly wonderful life with my two living, breathing rainbows.  Layla’s baby siblings brought light back into my world.  Their very being is a constant reminder of what we lost when Layla died – but there’s always beauty amongst the sadness.   I am stronger than I ever thought possible, and my broken heart has begun to heal.  It is a work in progress – but I’m proud of how far I have come.  My loss is a part of who I am, but I am not defined by it.  My life is not what I thought it would be – not how I had planned it out in my head.  But this is my reality, and I am embracing it.  Layla will forever be a part of me, and we will always speak her name.  Her legacy endures through the way we will always strive to help others who follow in our path.

To Donate:

To donate to the Stillbirth Foundation Australia and help fund much needed research, please visit: http://www.stillbirthfoundation.org.au/donate/

The Mighty Quinn

john_denham_the_mighty_quinnAs written by John Denham, father of  Quinn and Freya:

Much to our delight, on May 10th 2014, The Golden Cycling Club opened a new mountain bike trail in Golden, British Columbia called “The Mighty Quinn” in honour of our son Quinn. This showing of community support has provided us with unbelievable healing and has opened the conversation about the loss of a child.

This trail was built and conceived by Rick Seward and Brady Starr and championed by the club president at the time, Chad Jennings. It is Golden’s first machine-made trail and it is descent only. This is also significant because this trail is one of the best in Golden and has become a favourite. It has seriously become the trail on everyone’s lips. Local and visiting riders hear the story or often they ask about the teddy bear on the trail sign. As a result, the silence about stillbirth is broken.

The trail opening was attended by our adopted daughter, Freya. She was four days old at the time and we love that her first introduction to our community was in honour of her big brother. This year I rode the trail with Freya, and some friends. (Yes, we rode slowly and carefully and yes, it was healing).

I miss Quinn and I thought I would share this story of community healing and the breaking of silence on stillbirth with the Stillbirth Foundation of Australia.

Quinn would have been three years old in June 2015. For his birthday, his father John submitted a story of what the the Golden Cycling Club in Canada has done to break the silence on stillbirth.

top photo: John Denham, wife Kristy and daughter Freya

The group who attended the opening of the Mighty Quinn trail:

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John Denham, daughter Freya, friend Jan Kotyk with his son Asher.

For the Mothers with Empty Arms on Mothers Day

Picture1Written by Aoife Goldie

Leaning into the wind, chins tucked to chests we will visit the hillside with the tiny grave, lay the flowers, light candles. They will plunge their pudgy fingers into the soil, pull up the weeds, the worms, the clods of earth, then plant anew. They will slosh the water then run for the wishing well, flicking the long wet grass with their marvellously chubby legs – jumping and squealing and falling and howling and clambering to standing again, eyes sparkling and rosy-cheeked.

And there will be something so crazy beautiful and so fucking wrong with that image. Two where there should be three.

I will squeeze them close and whisper a million thank-yous – for the air in their lungs and the sparkle in their eyes, the blood in their veins and the glorious technicolour of their aliveness. My heart will sing and burst and break all at once. They are so magnificently, beautifully, vibrantly alive.

And he is not.

Mother’s Day was never meant to sting. But then there are the rest of us…

This is for you.

For the battle weary IVF-ers, whose parenthood rests squarely in the hands of the white-coat clad, bespectacled miracle makers. The oft-portrayed scene of a sudden queasiness, a furrowed brow, then a positive pregnancy test has long been lost. And in its place, a language of cold hard science, acronyms and reference ranges, classifications, grades and high-stakes financial arrangements. Armed with microscopes and latex gloves, baby-making is a precisely orchestrated operation – both loved and loathed.

Heart-pinched and weary from the baby commercials, swollen bellies and the barely whispered fear, “But what if we can never…?” These are the mothers who dutifully smile as they listen to stories from fertile myrtle and her umpteenth “oops-baby.” Who attend the baby showers, visit the newborns – smiling and cooing in all the right places – present the gift that was so painfully sad to buy. Who nod graciously as they accept unsolicited advice, stifling the urge to correct that “No, relaxing will not in fact unblock fallopian tubes.” Who willingly endure the pokes and the prods, the bloat and the weight gain, the high dose hormones coursing through veins. Striving to maintain that even keel at work and all the while worrying if anyone will catch on after one too many “dentist visits.”

For the recurrent loss mothers, who held hope so carefully, fell in love at two pink lines, and then again, and then tried not to, but still did… who did everything right, and researched the vitamins and exercised religiously and gave up the booze and the caffeine and the cheese and the soft scoop ice-cream because wasn’t there an article once? Who analysed symptoms, dreaded each bathroom break, felt that familiar lower back pain then inhaled deeply before making yet another trembling call, “I think I’m losing it again…” Who listened to the well intentioned but minimising words “It’s so common” or “It was nature’s way.” Who endured the descriptions of their precious baby as “not viable”, “chromosomally abnormal” or as “retained products of conception.” Who felt branded by the word “miscarriage” – as though they dropped the baby and it broke. Who baulked as they discovered that they would have to endure this three times before anyone was prepared to care. Who lay back in a sterile surgical gown, and had their future sucked out of them along with their baby.

For the mothers who have held their dead child in their arms. Who know that catastrophic, gasping, incomprehensible pain. Who thought they might die from it, and were at times sorry that they didn’t. Who left hospital with a tiny white memory box – so heartbreakingly light – and sobbed as they reached the empty car seat.

Who laboured knowing their baby was already gone. Traumatised by the sonographer’s too-long-pause, as they fruitlessly drew the wand over and back, and over and back, frowned at the screen (now tilted away) before turning, crestfallen, to utter the words, “I’m sorry, there’s no heartbeat.”

For the mothers who cannot have children – who wanted and waited for the miracle that never came. Who mourn the hope of ever feeling their baby kick and roll inside them. Who scour the internet for global adoption policies, surrogacy rights, and willingly subject themselves to microscopic scrutiny, assessments of suitability, invasive questions, forms, home visits, interviews. Classified as sub-fertile, but feeling sub-human.

For the NICU warriors – too well versed in all things medical, who have kissed their babies goodnight, not knowing if they will still be alive in the morning. Who have watched and waited and longed for a simple cuddle. Who pump to a schedule, scrub like a surgeon and keep encyclopedic notes. Who have steadied themselves for a chat in the relative’s room, or heard that sound a mother makes when her child dies, petrified that she might be next.

For the brave souls who are white knuckling their way through a subsequent pregnancy – the most gruelling endurance test life has ever thrown their way. Where the pressure to smile and glow and ignore all that came before is maddening. Where all they want to do is cocoon away, hunker down and gestate, preferably hooked up to a continuous CTG monitor. Where scans are never “another chance to peek in at the baby” but instead a revisit to the most traumatic moment of their life, that darkened room housing their biggest fear, as they fix their gaze at the wall, the floor, anywhere but the screen, unable to look unless they first hear that the baby is still alive.

For every mother who has buried a piece of herself with her child, or her dreams of one…

I am sorry that you didn’t get your little slice of normal. I’m sorry that it was you who got the raw deal. I’m sorry that you know a pain so fierce even exists. I’m sorry for the feelings of shame and guilt, jealousy and bitterness, fear and anxiety, pain and grief. I’m sorry for the relationships that have been destroyed, the confidence knocked, the innocence lost. The toll on your body, your relationships, your finances. For the due dates that never converted to birthdays, for the death days that should never have been.

I’m sorry that Mother’s Day will not be a day where you receive a homemade card with an unidentifiable gift, and glimpse the pride in your child’s face as you shower them with hugs, kisses and exclamations of gratitude. I’m sorry that this has become a day of endurance and isolation – more complicated than it ever should have been.

I know you didn’t want to be brave, or strong. I know you just wanted your baby.

I wish you strength and peace and I send a little extra love your way today.